How we manage your data

Caesarean birth wound care: Share your experience and help improve care

Your privacy matters to us

Your privacy is important to the University of Bristol, the PROMPT Maternity Foundation and our team here at Thiscovery. We keep your information safe and secure.

This research will help us understand what matters most about wound care after a caesarean birth.

Who is collecting your information?

The University of Bristol and the PROMPT Maternity Foundation have asked us to do this research. They want to help improve care for women and possibly develop better wound care products.

Thiscovery collects your survey answers for University of Bristol and the PROMPT Maternity Foundation. We follow strict rules to keep your information safe.

What information will we collect?

Your answers about:

  • Your caesarean birth(s) and treatment of your wound
  • Your experiences of caring for your wound following your caesarean birth
  • What’s most important to you when it comes to caesarean wound experiences, after care and healing.

Information about you:

  • Your age group
  • Your ethnic background (this is “special category” data that gets extra protection)
  • The region of the UK you live in

Your contact details (optional):

  • Your name and email address
  • Only if you want updates about the research results or to find out about future relevant projects

Important: We don't collect your name during the survey. But the mix of information you give us might make it possible to work out who you are.

Right to withdraw: You can stop taking part at any time and choose not to answer any questions.

University Research Ethics and data protection: This research is conducted in accordance with ethical research standards and UK data protection laws.

Why can we use your information?

For your survey answers: We need this so the University of Bristol can do research that helps improve healthcare for everyone.

For special category data (health and ethnicity): We need health information to understand the experiences of women who have had a caesarean birth and how this may affect what’s most important to women. We need to understand how ethnic background affects women’s experience and priorities.

For your contact details: Only if you choose to give them to us. You can change your mind at any time.

How will we keep your information safe?

We keep things separate:

  • Your contact details are kept separate from your survey answers
  • Your survey answers use a number instead of your name
  • This means we cannot link your name to your answers

We use secure systems:

  • All information is encrypted (scrambled) and stored safely
  • Only the research team can see your information
  • We follow University Research Ethics security rules
  • We use certified deletion tools when we remove data

Data analysis and transfer:

  • Thiscovery will first look at your survey answers and write a report for the University of Bristol and the PROMPT Maternity Foundation.
  • After completing the analysis, Thiscovery will securely transfer your survey answers (with your name removed) to the University of Bristol only.
  • The University of Bristol wants to keep this data for the research team conducting the project to do further analysis.
  • Once University of Bristol confirms they have received the data safely and all necessary checks have been made, Thiscovery will delete their copy.
  • Your contact details are transferred separately if you choose to provide them.

Important: Sending information over the internet is never 100% safe. We do our best to protect it, but we cannot promise complete security.

How will the University of Bristol and the PROMPT Maternity Foundation use your answers?

Further analysis by the University of Bristol

The University of Bristol will use your survey data for analysis by the research team conducting this research to:

  • Understand experiences and priorities of the women and healthcare professionals who have taken part, and to look at differences between different groups of people's data.
  • Write reports and articles about what they found.
  • Inform the improvement approaches of care for women who have had a caesarean birth and the potential development of new wound care technologies.

Your answers will be mixed with everyone else's answers. No one will be able to tell which answers are yours.

The PROMPT Maternity Foundation:

  • The PROMPT Maternity Foundation will not receive any of your data directly but will be given a copy of the Thiscovery Insight report.
  • They will also work with the University of Bristol to write up the analysis in academic outputs.

Mölnlycke Healthcare Limited:

  • Mölnlycke Healthcare Limited (the funder) will not receive any of your data directly but will be given a copy of the Thiscovery Insight report and any academic outputs published by the University of Bristol.
  • Mölnlycke will use the report and academic outputs to inform the potential development of new wound care technologies.

Who will we share your information with?

We will share your data with:

  • University of Bristol (who asked for this research)

We will not share your data with:

  • The PROMPT Maternity Foundation
  • Mölnlycke Healthcare Limited

If you give us your contact details, only Thiscovery or University of Bristol will contact you about the research.

How long will we keep your information?

Your survey answers:

  • Thiscovery keeps them for 24 months after the project ends
  • University of Bristol keeps them for ongoing analysis for 5 years

Your contact details:

  • Deleted immediately if you ask us to remove them
  • Deleted when you haven't been active for 24 months

Research summaries: May be kept forever to help inform improved approaches to care and the potential development of new wound technologies (but these won't identify you).

Your choices and rights

You can:

  • Stop taking part at any time during the survey
  • Skip questions you don't want to answer
  • Ask to see what information we have about you
  • Ask us to correct wrong information
  • Ask us to delete your contact details (we will do this immediately)
  • Complain if you're not happy

Important:

  • If you don't give us your contact details, we might not be able to remove your survey answers later. This is because we won't know which answers are yours.
  • Once we transfer your survey data to the University of Bristol we cannot get it back or delete it from their systems.
  • University of Bristol will use your data for ongoing research analysis, which may limit their ability to delete individual responses.

Your healthcare will not be affected by taking part or not taking part in this research.

Research results

If you give us your contact details, Thiscovery and the University of Bristol will tell you:

  • What the research found out
  • How they are using it to inform improved approaches to care and the potential new development of wound care technologies

Contact us

Questions about the survey: Email Thiscovery at help@thiscovery.org

Questions about how University of Bristol uses information:  

University's Data Protection Officer at data-protection@bristol.ac.uk

Complaints: if you have any concerns and you would like to contact someone independent of the study, please contact research-governance@bristol.ac.uk

Your consent

By taking part in this survey, you agree that:

  • The University of Bristol can use your answers to undertake this research in Caesarean birth wound care
  • Thiscovery can collect your answers for the University of Bristol and the PROMPT Maternity Foundation
  • You understand your information will be shared with the University of Bristol

You can stop taking part at any time.

Thank you for helping us understand women's experiences and priorities for caesarean wound after care and healing.