Share your experience of healthcare delivered remotely

Remote communication with people with COPD:
building consensus on good practice

Please complete by

22 June 2020

About this project
Information for participants

We aim to understand

How are people with COPD accessing specialty care during the pandemic?

What works well and what can be improved?

How can we use these insights to improve remote communication?

About the task

We would like you to complete an online questionnaire about remote specialty COPD care that would usually have been provided face-to-face in hospitals or specialty community settings over the last three months.

The questionnaire should take you no more than 10 minutes to complete.

We are keen to hear your experiences

Are you a clinician or a patient with experience of specialty care for COPD over the last three months?

A new way of working

We are working quickly to develop this online platform to run this rapid-response project. We hope this process will be easy for you to use.

However, if you experience any technical problems, please let us know. You will see a feedback tab at the bottom right of the window that you can use to contact us. We will respond quickly and help where we can.

Step by step

Register your Thiscovery account

It only takes a couple of minutes. You’ll need it for the tasks.

Respond to the questionnaire

Provide your comments. It should take you no more than 10 minutes.

Answer a few follow-up questions

Optional activity at a later date: give your views on priorities.

Information for participants

Key things to know

  • In this study, we will be collecting observations about healthcare delivered remotely by hospitals and specialty community services to people with COPD, including thoughts on what works well and what could be improved.
  • We ask you to share your views through an online questionnaire. After completing the questionnaire, we ask for your permission to ask you some follow-up questions in 46 weeks.
  • Participation is voluntary and will not affect the health care you receive.
  • Your contributions to the survey will be treated confidentially and your responses are anonymous.
  • This text explains the research in more detail.

About this study

As part of improving healthcare provision for people with COPD, this study aims to reach agreement on best practice in hospitals and specialty community services for remote communication between clinicians and people with COPD.

We are using an online questionnaire to help us understand how people with COPD are accessing care remotely for their condition during the COVID-19 pandemic, and how well it is working. We will analyse the data, and then will ask respondents who agree to being contacted again to share their thoughts on which activities are priorities for routine NHS practice.

When we have gathered all the data, an expert panel will identify good practice based on all the responses and other available evidence.

What will happen and how will you be involved?

You register for the study and complete the questionnaire.

After you complete the questionnaire, we ask for your permission to contact you again. If you consent, we contact you in 4–6 weeks’ time when we have analysed everyone’s responses to the questionnaire, to ask if you would like to take part in a process to identify priorities for improving remote consultations and make them as helpful as possible.

We will share our findings with participants. Results will be presented in terms of groups of individuals and any individual data will be anonymous.

What are the benefits of this study?

The study will provide insights into best practice in hospitals and community services for remote communication between clinicians and people with COPD.

Are there any risks?

There is very little risk associated with this study.

Who is funding this study?

This work is funded by THIS Institute, which is based at the University of Cambridge, and is carried out in collaboration with the Royal College of Physicians.

THIS Institute’s goal is to strengthen the evidence base for improving the delivery of healthcare in the NHS.

Will my taking part in this project be kept confidential?

By participating in the questionnaire, you agree to your responses being used in our project. The information you provide will be kept strictly confidential. All responses are anonymous. All information collected will be analysed by the project team only and used only for project purposes.

Ethical review

The patient questionnaire portion of this project has been reviewed by the University of Cambridge Psychology Research Ethics Committee.

Need help?

If you have any questions about anything to do with the study, please don’t hesitate to contact us.

Any complaints or concerns?