Demo

Help us understand your experience as a Patient Safety Specialist

All Patient Safety Specialists across England are invited to share their views on the role, what helps and hinders it, and how to support it in the future. NHS staff members are recommended to register with an @nhs.net address.

Open until

31 March 2023

About this project
Information for participants

Background

Following publication of the Patient Safety Strategy, the NHS in England introduced a new role: the Patient Safety Specialist. Patient Safety Specialists are intended to be central in ensuring that measures to improve patient safety are implemented effectively in their organisations.

Three years on, what the role looks like in practice, how this varies, and its impact within different types of organisation is uncertain. This project seeks to address this gap.

About this project

We are seeking to build an understanding of the role of Patient Safety Specialist in theory and in practice. Using various methods, we are collecting information from the perspective of programme leads, Patient Safety Specialists themselves, and those working around them.

You will be asked to complete an online survey to help us understand what works and what could be improved, as the role of Patient Safety Specialist becomes more established. Learning about the main achievements and key challenges facing those in this role will provide crucial evidence for the future of patient safety in the NHS.

We invite all Patient Safety Specialists in England to complete a short survey

Share your experiences as a Patient Safety Specialist and your views on developing the role

We want to understand

How Patient Safety Specialists arrived at their role


What they do in practice


How well their work is going and what would help

Step by step

Register
Create your Thiscovery account and verify your email address
Give consent
Read the information for participants and agree to take part
Complete survey
Take part in this 15 minute survey

Information for participants

Key things to know

  • We are exploring the development and implementation of the Patient Safety Specialist programme in the NHS in England.
  • The project aims to understand how best to support and improve the Patient Safety Specialist role and provide recommendations to NHS England for future policy and strategy regarding the role.
  • In the first stage of the project, we interviewed people who have been central to the programme design and delivery.
  • We are now in the second stage of the project, which involves an online survey of Patient Safety Specialists across England.
  • Participation in this project is entirely voluntary. If at any time you decide you do not want to take part, that’s not a problem. Please let the research team know by emailing pss@thisinstitute.cam.ac.uk.
  • Your confidentiality will be maintained at all times.
  • This webpage explains the project in more detail.

About this project

As part of plans to improve the safety of patients, in 2019 the NHS in England introduced a new role: the Patient Safety Specialist. Patient Safety Specialists are intended to be central in ensuring that measures to improve patient safety are implemented effectively in their organisations. But the impact of the role itself is uncertain. This project seeks to address this gap.

In this project we are seeking to build an understanding of the role of Patient Safety Specialist in theory and in practice. Using various research methods, we are collecting information from the perspective of programme leads, Patient Safety Specialists themselves, and those working around them. The project will deliver important learning to inform the development of the role itself and support for it. It will also provide transferable insights into the opportunities and challenges of delivering improvement through designated roles like the Patient Safety Specialist, with value for future similar programmes in the United Kingdom and beyond.

We would like to invite you to take part in an online survey. This part of the project focuses on building a full picture of the profile of Patient Safety Specialists nationally, including information on their background experience and responsibilities, current priorities, key relationships within and beyond their organisations, total time dedicated to the role, and the main issues facing them as they seek to fulfil their role.

What will happen and how will you be involved?

You are invited to complete an online survey. The survey includes both closed and open-ended questions. You will be asked about your professional background, key activities, perceptions of responsibility and reflections about your work as a Patient Safety Specialist.

This project is hosted by an online platform known as Thiscovery. If you would like to take part, you will need to register on the secure Thiscovery platform, which has been developed by The Healthcare Improvement Studies (THIS) Institute at the University of Cambridge and facilitates consultation projects like this one. The key features of the platform are set out below:

What is it? – Thiscovery is a secure online platform developed by THIS Institute. It facilitates members of the public, including people who access healthcare as patients, carers and service users, healthcare professionals, and policy makers, to engage in research through the platform.

How is it accessed? – Thiscovery can be accessed on PCs, phones, tablets and other devices using the following link: www.thiscovery.org. To use Thiscovery, potential participants first register to use the platform by providing the following details: name, email address, and current location (England, Northern Ireland, Scotland or Wales).

What are the benefits of registering? – By registering for an account, participants can review the projects and tasks they’ve completed on the platform and receive information and updates on Thiscovery based research.

Within Thiscovery you will be asked to complete an initial set of eligibility questions, read a consent statement and provide consent electronically. Following consent, you will be emailed a link to the project information on the Thiscovery website, and a copy of your completed consent form for your records. Once you have given your consent, you will be able to access survey materials through the Thiscovery platform.

Completing the survey should take no more than 15 minutes.

You will also be able to indicate if you are interested in taking part in the next stage of the project.

What are the benefits of this project?

There will be no direct benefit to you from taking part in this project; however, your contribution will inform ongoing work in the NHS in England and beyond to improve patient safety and its management.

Are there any risks?

The risks in this project are minimal. The survey is not an assessment of individual performance, and we will seek to ensure that no information is reported that could identify individuals. It is unlikely the content of the survey will cause any distress and, if there are questions you would rather not answer, you will be able to skip them.

What do I do if I want to withdraw from the project?

If you change your mind about taking part in the project you can withdraw at any time without giving a reason. However, it may not be possible to remove research data that has already been submitted through your Thiscovery account.

To withdraw please email pss@thisinstitute.cam.ac.uk.

Personal data used to register for Thiscovery will be securely stored on Thiscovery, as set out in the Thiscovery terms and conditions. If you decide at any point after registering with Thiscovery that you no longer want your contact details kept by Thiscovery, you can de-register by emailing help@thiscovery.org.

For more information on how to manage your Thiscovery account, please see the privacy policy.

How will your data be used?

How will we use information about you?

The University of Cambridge is the sponsor for this project based in the United Kingdom. We will be using information from you in order to carry out this project, so we are the data controller for this project. This means that we are responsible for looking after your information and using it properly. We will keep identifiable information about you for as long as it is required. This will be stored securely by THIS Institute, University of Cambridge. Some of the information that you provide might be considered as health data or other data that would be classed as Special Category data under Article 9 of the General Data Protection Regulation (GDPR). As part of the consent process for this project we therefore need to seek your consent for the processing of this data.

We will need to use the following information from you for this research project:

  • Your consent form.
  • Your name and contact details if you are interested in taking part in the next stage of the project or in being informed about the results of the project.

People will use this information to do the research or to check your records to make sure that the research is being done properly. Only the direct recruiting team, data management and authorised audit systems will have access to your personal information.

All information for analysis and all reports will be robustly anonymised. Your data will have a code number instead.

We will keep all information about you safe and secure. For more information about our secure data area please see the secure data hosting service. In the future, the data may be shared anonymously with other academic researchers working with Thiscovery. These partners will hold a data agreement with THIS Institute and will be bound by the same ethical requirements.

If you agree to take part in this project, the information we gather may be shared anonymously with academic and commercial researchers external to the project in and outside the UK. This is so that our research can be used to support other likeminded researchers.

Once we have finished the project, we will keep some of the data so we can check the results. We will write our reports in a way that no-one can work out that you took part in the project. Personal identifiable information will be deleted 24 months after the end of the project. This is to allow us to communicate any results from the project to those participants who want to be kept informed and agree to be re-contacted.

What are your choices about how your information is used?

You can stop being part of the project at any time, without giving a reason, but we will keep research data that you have already submitted. Please read the earlier section on withdrawing from the project for full details.

We need to manage your records in specific ways for the research to be reliable. This means that we won’t be able to let you see or change the data we hold about you.

Where can you find out more about how your information is used?

You can find more about how we use your information via the following:

What will happen to the results of the project?

In addition to reports for NHS England and summaries of findings for key groups involved, such as Patient Safety Specialists themselves, we hope the results of the project will be reported in peer-reviewed journals and presented at conferences. We can email you about the project’s publications if you wish to be kept informed. No personally identifiable information will be included in any reports or other outputs of the project: any quotations used in reporting will be completely anonymised.

Who has reviewed, organised and funded the project?

  • This project is led by Professor Graham Martin, Director of Research at THIS Institute, University of Cambridge.
  • THIS Institute is an independent research institute co-created by the University of Cambridge and The Health Foundation, an independent charity committed to bringing about better health and health care for people in the UK.
  • As a service evaluation, this stage of the project does not require formal ethical approval. However, it has been peer reviewed by an academic external to Cambridge, and informally ethically reviewed by an academic at Cambridge who is independent from the project.
  • This project is organised by an independent and highly experienced team from THIS Institute.
  • This project is funded by THIS Institute.

Get in touch

For questions or concerns about anything to do with the project, please email the project team at pss@thisinstitute.cam.ac.uk. For technical problems or questions about the platform, please contact the Thiscovery team using the chat or email at help@thiscovery.org.

For any complaints or concerns

If you have a complaint about any aspect of the study, please contact the Director of THIS Institute, Mary Dixon-Woods (mary.dixon-woods@thisinstitute.cam.ac.uk).

If you are still not satisfied, you can contact the University of Cambridge Data Protection Officer at dpo@admin.cam.ac.uk.

If you are not happy with their response or believe they are processing your data in a way that is not right or lawful, you can complain to the Information Commissioner’s Office (www.ico.org.uk or 0303 123 1113).

Researchers

This project is led by researchers at THIS Institute, University of Cambridge.

Prof Graham Martin, THIS Institute
Prof Graham Martin, THIS Institute
Dr Robert Pralat, THIS Institute
Dr Robert Pralat, THIS Institute
robert.pralat@thisinstitute.cam.ac.uk
Professor Justin Waring, University of Birmingham
Professor Justin Waring, University of Birmingham
j.waring@bham.ac.uk
Dr Mohammad Farhad Peerally, University of Leicester
Dr Mohammad Farhad Peerally, University of Leicester
mfp6@leicester.ac.uk
Tara Lamont, THIS Institute
Tara Lamont, THIS Institute
tara.lamont@thisinstitute.cam.ac.uk